So now I wanted to give everyone an update on how I'm doing with my fibroadenomas. I have very large breasts 38 D, and I was hoping to be approved for a breast reduction in conjunction with a surgery to take out my fibroadenomas so that I could get a lot of that breast tissue out. I was just denied yesterday by my insurance company (F&@!% you insurance!!), which is annoying because I have a huge issue with insurance companies in America, but it also means that I will have to rethink my strategy. My doctor is going to do a peer to peer follow up, basically to ask them again if they will do the surgery. I will let you guys know.
Otherwise I'm going to let them grow, which is what I normally do, and when they start sticking out a lot I get them taken out. The only frustrating thing is that the ones in my left breast are already pretty big-they stick out-and the 9 in my right are smaller. So I'm not sure how long I should wait because they don't like to operate on many that are smaller in size. Ugh. I'm trying to stay positive though! I'm also working on dieting and exercising well because I do believe that affects our disease as well.
I meant to add to my birth control post that I do believe that my fibroadenomas have stopped growing since I stopped birth control. They have been relatively at the same size for 5 months now. Ok going to work on homework now, while staying positive:)
Thanks guys for your comments and questions, please keep it coming!
xoxo
Lolo
Tuesday, February 21, 2012
Birthcontrol: My Story
C brought up a great point about birth control and its possible interactions with our disease. She must have read my mind because that was what I wanted to talk about.
Long story short, I believe birth control DOES increase the growth of your fibroadenomas because it did for me. Now, please keep in mind that this is my personal narrative, all bodies are different and all the tests they have done to prove this aren't consistent enough. But let me share my story.
If you read my first post, you know that I had a mild case of fibroadenomas, and then a five year hiatus. All of a sudden I currently have 3 in my left and 9 in my right. Well what happened during those five years? I went on birth control. Just a side note-I went on birth control for dysmenorrhea, so we can talk about that to if anyone deals with that condition-but at any rate I saw a large increase with my fibroadenomas and I'm currently off birth control. I took a women studies course and from what I learned birth control isn't the most well tested pill to begin with...so I hope everyone is aware. But yea my fibroadenomas grew like no ones business since starting birth control and it took about 2 years for me to notice them.
C, because of how severe your condition is, I would think twice about taking the pill as a form a birth control. I would focus more on non-hormonal forms of birth control including condoms, contraceptive sponge and the diaphragm.
If anyone else has had an interaction with birth control and fibroadenomas, please share your story!
xoxo
Lolo
Long story short, I believe birth control DOES increase the growth of your fibroadenomas because it did for me. Now, please keep in mind that this is my personal narrative, all bodies are different and all the tests they have done to prove this aren't consistent enough. But let me share my story.
If you read my first post, you know that I had a mild case of fibroadenomas, and then a five year hiatus. All of a sudden I currently have 3 in my left and 9 in my right. Well what happened during those five years? I went on birth control. Just a side note-I went on birth control for dysmenorrhea, so we can talk about that to if anyone deals with that condition-but at any rate I saw a large increase with my fibroadenomas and I'm currently off birth control. I took a women studies course and from what I learned birth control isn't the most well tested pill to begin with...so I hope everyone is aware. But yea my fibroadenomas grew like no ones business since starting birth control and it took about 2 years for me to notice them.
C, because of how severe your condition is, I would think twice about taking the pill as a form a birth control. I would focus more on non-hormonal forms of birth control including condoms, contraceptive sponge and the diaphragm.
If anyone else has had an interaction with birth control and fibroadenomas, please share your story!
xoxo
Lolo
Positivity and Scarring
Hey yal!
So sorry for being gone so long. Again, back in school and had a couple of midterms. But I will try to be more consistent with blogging.
It was such a pleasure re-reading everyone's post. I felt so positive and comforted that I wasn't the only female going through this. I'm amazed at how much you two, Sarah and C, have gone through and your spirits are still high! That gives me incredible energy and I believe we can help eachother through these times.
Sarah, it must be extremely difficult being faced with a mastectomy. I still shocked that fibroadenomas can be this frequent with some individuals. And I know C can relate, because she to has had many surgeries. I felt sad that you have lost count C, and I'm sorry about the scar tissue. I'm sure you already know this, but everyone has scars on their body whether you can see them or not, and I'm sure you will find someone who loves those scars:) You are a trooper and you are beautiful.
Personally, I have been lucky with scarring. My doctors (so far) have cut around the areola, so the scarring blends right into my skin (I don't know if my complexion has anything to do with it either, but I am darker complected...). Sarah how is your scarring?
To answer your question C, I have never heard of cyroablation. I just did a quick internet search and it appears like a less invasive procedure, or has the potential to leave less scarring. Thank you for sharing this option with us. Why do the doctors not want to use this procedure on you? Is it a new procedure? I will do some more of my own research and post what I find. I have a lot to say but I think I'm going to post them separately.
Although I may not blog every week, I still do receive emails when people post on this blog. So if anyone needs support in anyway, please feel free to blog and I will see it in my email and respond asap. Support is highly important:)
xoxo
Lolo
So sorry for being gone so long. Again, back in school and had a couple of midterms. But I will try to be more consistent with blogging.
It was such a pleasure re-reading everyone's post. I felt so positive and comforted that I wasn't the only female going through this. I'm amazed at how much you two, Sarah and C, have gone through and your spirits are still high! That gives me incredible energy and I believe we can help eachother through these times.
Sarah, it must be extremely difficult being faced with a mastectomy. I still shocked that fibroadenomas can be this frequent with some individuals. And I know C can relate, because she to has had many surgeries. I felt sad that you have lost count C, and I'm sorry about the scar tissue. I'm sure you already know this, but everyone has scars on their body whether you can see them or not, and I'm sure you will find someone who loves those scars:) You are a trooper and you are beautiful.
Personally, I have been lucky with scarring. My doctors (so far) have cut around the areola, so the scarring blends right into my skin (I don't know if my complexion has anything to do with it either, but I am darker complected...). Sarah how is your scarring?
To answer your question C, I have never heard of cyroablation. I just did a quick internet search and it appears like a less invasive procedure, or has the potential to leave less scarring. Thank you for sharing this option with us. Why do the doctors not want to use this procedure on you? Is it a new procedure? I will do some more of my own research and post what I find. I have a lot to say but I think I'm going to post them separately.
Although I may not blog every week, I still do receive emails when people post on this blog. So if anyone needs support in anyway, please feel free to blog and I will see it in my email and respond asap. Support is highly important:)
xoxo
Lolo
Wednesday, February 1, 2012
Will return shortly!
Hello Everyone!
I just realized a lovely email from C and I still have not responded to Sarah's beautiful story. I wanted to inform you that I will blog very soon! I just started back up at the university, therefore during the week time just evaporates-I swear. At any rate, I will post this weekend especially a response to C's last question about birth control, which I'm so glad she asked because that was actually my next blog post I was going to write. Have an amazing rest of the week and you will hear from me soon!
xoxo
I just realized a lovely email from C and I still have not responded to Sarah's beautiful story. I wanted to inform you that I will blog very soon! I just started back up at the university, therefore during the week time just evaporates-I swear. At any rate, I will post this weekend especially a response to C's last question about birth control, which I'm so glad she asked because that was actually my next blog post I was going to write. Have an amazing rest of the week and you will hear from me soon!
xoxo
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